The use of genomic data from probands and patients
Public workshop | 3 May 2018 | Berlin
Should biomaterial donors be informed of a BRCA mutation, which could trigger breast cancer, if this is discovered as an incidental finding in a study, for example? And if so, how should this happen? This was among the questions discussed by the 120 participants attending the workshop held by the German Biobank Node (GBN) in Berlin on 3 May entitled “Meine Gene gehören mir! Nutzung genomischer Daten von Probanden und Patienten” (“My genes are mine! The use of genomic data from probands and patients”). It was the first time that an interdisciplinary exchange took place between experts on this complex issue. Here, you can find the press release as well as the workshop programme.